the goan I network
PANAJI
Nine-year-old Sanskruti Kamble who is in a critical condition, was shifted to Cosme Mathias Menezes Polyclinic, Altinho on Saturday, after doctors at Healthway decided to take her off the ventilator. She turns 10 years old today.
Sanskruti, who was undergoing dialysis every alternate day, was admitted in to Healthway Hospital last Saturday after she started experiencing breathlessness.
She then suffered two massive heart attacks, informed a volunteer from Child Line who has been helping the family.
Suffering from a rare condition called Goodpasture Syndrome, Sanskruti is the first patient diagnosed with the illness in the state. She will receive palliative care at Menezes Polyclinic as doctors have said that no further treatment is possible.
“The doctors and staff at Healthway took good care of Sanskruti and the expenses amounting to Rs 1,45000 were covered under the government’s DSSSY scheme. Doctor Sumanth Prabhudesai accompanied her to CMM Polyclinic where Dr Philomena P D’Souza, former head of Paediatrics at GMC took her into palliative care. She was breathing on her own without ventilator at the time of admission,” informed a family member.
Until mid-July, Sanskruti was keen on going back to school, said her father Sudhakar, and even though doctors had then said she could go if she so wished, her legs were too swollen to enable her to go.
However, little Sanskruti was very confident that she would soon resume classes at Don Bosco High School, Tuem where she was a student.
In mid-July, the PTA of the school came together and contributed over a lakh for Sanskruti’s medical expenses. The family also received help from other quarters.
Goodpasture Syndrome is an auto-immune disease. It occurs when antibodies attack the basement membrane in lungs and kidneys, leading to bleeding from the lungs and kidney failure. Sanskruti had earlier undergone plasmapheresis, a treatment that seeks to remove anti-bodies from the blood.
GPS affects about 0.5“1.8 per million people per year in Europe and Asia, and even with treatment, the five year survival rate of those diagnosed is less than 80%. The cause of the disease is unknown.
