the goan I network
PERNEM
Sanskruti Kamble, diagnosed with the extremely rare Goodpasture Syndrome succumbed to her illness on her 10th birthday on Sunday.
The news came as a shock to people Pernem where she hails from and to others in the State where support had poured in for her.
Sanskruti was down with the illness for several months and was presently admitted to a hospital at Altinho, Panaji.
On Saturday, her condition deteriorated and was shifted to GMC, Bambolim. It is alleged that she was asked to be taken to another hospital as there was no ventilator facility. Sanskruti was later admitted to private hospital at Althino-Panaji, where doctors told the family she had only 12 hours to live.
Aggrieved parents then celebrated Sanskruti’s birthday in the presence of family members and relatives in hospital premises. However, Sanskruti bid adieu to this world on Sunday morning, the day she was born.
According to the sources, both the kidneys of Sanskruti had failed due to her illness. Her younger brother had offered to donate his one of his kidney.
Speaking to The Goan, GTDC director and businessmen Jeet Arolkar said, “Sanskruti’s father and I had
submitted a memorandum before Chief Minister and Health Minister for treatment of Sanskruti but they didn’t act on the files.”
Goodpasture Syndrome is a rare autoimmune disease and Sanskruti is the first in Goa and only the 25th case reported in India. She was a Class IV student at Don Bosco, Tuem
Sanskruti first took ill while answering her final exams in the academic year gone by.
Sanskruti’s family went pillar to post to try and diagnose her illness. Visits to a number of hospitals and several pathological tests later, the rare condition was diagnosed, thanks to a biopsy done at Manipal Hospital. She was then admitted to Healthway Hospital on May 30 for treatment.
Her final rites were carried out at the crematorium in Tuem.
